About Us


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Patient and Public Participation


Independent Cancer Patients' Voice (ICPV) is a patient advocate group independent of established UK cancer charities and aware of the value of medical research to both public health and to the national economy.

Our Aims

Our aim is to improve existing treatments for every cancer patient and develop new treatments by bringing the patients’ voice into clinical research.

We do this by:

  1. Educating, supporting and mentoring patients so that they can have an equal voice with clinicians and researchers
  2. Bringing the patients’ voice to clinicians and researchers – i.e. by being patient advocates in clinical research so that this research takes into  account the patients’ (and carers, relatives etc) viewpoint to improve outcomes (cancer mortality, morbidity, quality of life) for all people affected by cancer (patients, relatives, carers)

We are informed and committed patient advocates and we can play an increasingly effective role in educating both potential patients and professional staff as to the benefits of clinical trials and research.

The core members of our group are located throughout the UK and we have a good mix of business, healthcare and scientific knowledge and experience. We also have a strong network of individuals and groups of cancer (and non-cancer) patients to help us to determine the research questions that cancer patients would like answered and to raise the profile of clinical trials among the patient community and thus increase accrual as well as improve outcomes for future patients.

We have an active online discussion group and members where members can exchange views and review research papers.

We have the full support of the professional members of the NCRI Breast Clinical Study Group (and from many research centres) with a keen interest in teaching us at study days on the science/biology/genetics of cancer and the development of new treatments.

For more information please see this video.

Please see this video for information on the recent VOICE course held at the Warwick Trials Unit by ICPV.

Seminars


Date:  20 June 201716:00
Speaker:  Nicholas Turner
From:  Institute of Cancer Research
Title:  TBC
Host:  Rob Clarke
 
Date:  04 July 201716:00
Speaker:  Richard Iggo
From:  Bergonié Cancer Institute - University of Bordeaux
Title:  The mammary ducts create a favourable microenvironment for xenografting of luminal and molecular apocrine breast tumours
Host:  Charles Streuli
 
Date:  14 September 201716:00
Speaker:  Mohamed Bentires-Alj
From:  University of Basel
Title:  TBA
Host:  Rob Clarke
 
Date:  05 October 201716:00
Speaker:  Daniel Rea - Breast Cancer Now Seminar
From:  Institute of Cancer and Genomic Sciences - University of Birmingham
Title:  TBA
Host:  Andrew Wardley